Tag Archives: AllTrials

From compliance to partnership: a different type of patient journey

The BMJ has called for a patient revolution, a “fundamental shift in the power structure in healthcare” in which patients improve healthcare, and not just for themselves. This is not just about engaging patients with specific decisions affecting their care, moving away from the idea of doctors’ orders or compliance, in which patients take the dose of medicine prescribed for them. It is about opening up the whole decision-making process to patients as partners. Continue reading

AllTrials not SomeTrials: no more invisible evidence

To assess the evidence, you need to know it is there.

Properly conducted clinical trials provide the best evidence for whether drugs work and are safe. But about half have never been published, and trials with positive results – where the drug concerned is shown to be safe and effective – are more likely to be published than negative ones. Patients can be harmed – for example if a treatment found to be harmful in an invisible trial is then given to patients in a new one – or medicines used ineffectively or wastefully, as a result. Researchers can’t plan research properly because they don’t know what has gone before. The problems with this situation have been well documented for years, but things may now be going to change.

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